Engel and his wife had been open about the child's battle with a rare genetic condition. The journalist previously announced that Henry died from Rett syndrome a rare neurological disorder that affects the way the brain develops on Aug. 18, just five years after he was diagnosed with the incurable disease. With regular therapies to keep his body moving and his mind active, he was making progress. Terms of Use He said in a candid essay for Today that Henry was "not doing very well" considering the circumstances. Special needs kids have the most expressive eyes.. The foreign correspondent's son Henry was diagnosed with Rett Syndrome in 2017. 12,221, This story has been shared 9,366 times. 13,572, This story has been shared 12,221 times. [38][39][40] Engel produced "Tip of the Spear", a series of NBC reports on the hardships and dangers faced by American soldiers, for which he won a 2008 George Foster Peabody Award. [29] Engel reported on events from different perspectives by gaining and maintaining frequent access to U.S. military commanders, Sunni insurgents, Shiite militias, and Iraqi families. All rights reserved. TODAY remembers Richard Engels beloved 6-year-old son, Henry, According to the National Institute of Neurological Disorders and Stroke. "We don't want anyone else to go through this. What is most amazing, however, is the impact Henry had on so many of us at the Duncan NRI and on our Rett research. 13,615, This story has been shared 13,572 times. or redistributed. Henry was special in so many ways. Mary and Richard.. It also caused numerous underlying health conditions including impacting his breathing," he continued. For the age expectancy of people living with Rett . [42], Engel reported extensively on the Arab Spring movement. NBC News presenter Richard Engel has penned a tender tribute to his young son, a month on from his tragic death at six years old. "You were amazing warriors for Henry pouring your love and care into him and fighting for him every day with everything youve got. He was also unlucky, born with a rare genetic disease called Rett Syndrome.". Dr. Zoghbi and Henry from a 2019 TODAY segment. But research takes time, and Zoghbi said shes heartbroken that she and her team werent able to bring to the table something that could help Henry directly. NBC News chief foreign correspondent Richard Engel and his wife Mary Forrest are remembering their son Henry, who died in August at 6 years old. Engel linked to the memorial page in a follow-up post, writing, "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease.". When he is upset, he screams with his whole body and kicks his legs with power. On Monday, the NBC News chief foreign correspondent shared a sweet video of the moment his youngest son took his first steps. ", "His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness," he shared. Privacy Notice "He continues to be an inspiration for Dr. Zoghbi and her team as they work to find effective treatments for Rett syndrome, and they already are making significant progress with Henrys own cells," the post says. The NBC News chief foreign corespondent, who has spent much of his career covering warand political upheaval,announced in an email to the"Today" showthat he and his wife, Mary Forrest, welcomed their second child, Theodore Forrest Engel, over the weekend. He will always be with us, even now hes hard at work to help other children whose lives are more difficult than they should be, the NBC News chief foreign correspondent said on TODAY. [10][11] He then spent his junior year of high school in Italy and became fluent in Italian. I love all of them, she said. Thats the nature of this disease.. David Rutz is a senior editor at Fox News. "Henry was special in so many ways," Zoghbi wrote. Engel spent one summer as an unpaid intern at CNN Business News in New York City. Engel is the host of the MSNBC special series On Assignment with Richard Engel, which won a 2019 Peabody Award. Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare brain disorder. The TODAY regular shared a link to a memorial page on the Texas Children's Hospital website, which offered more details on Henry's life and his battle with Rett syndrome, a genetic brain disorder without a treatment or cure. Richard Engel has become an advocate for his son PeopleTV/YouTube Richard Engel and Mary Forrest's eldest son, Henry, suffers from a rare genetic condition called Rett syndrome, which. While Henrys cells are still being used in her research, Zoghbi stressed that shes learned so much from so many Rett syndrome patients on her path to find a cure. Everything to Know About Bruce Willis' Diagnosis, One Year into Ukraine War, NBC's Richard Engel Shares Insights from the Ground: 'Still in the Early Phases', their late son, his disease and the new balcony dedicated to his memory. [28] Engel covered all major milestones of the war, including the first free Iraqi election and the capture, trial, and execution of Saddam Hussein. Richard Engel Says His Son Henry Has 'Taken a Turn for the Worse' Due to Rare Neurological Disorder, Savannah Guthrie Posts Beautiful Tribute to Richard Engel and Wife Mary After Son Henry's Death, Richard Engel Honors Late Son Henry on His 7th Birthday, Gives 'Big Thank You' for Support, Everything Richard Engel Said About 'Beloved' Son's Journey with Rett Syndrome Before His Death, Hoda Kotb Gets Emotional as She Shares Tribute After 'Heartbreaking' Death of Richard Engel's Son, Richard Engel Celebrates Son's 5th Birthday, Shares Message to All Kids with Rett Condition, Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome, Richard Engel's Younger Son, 1, Takes His First Steps as Big Brother Henry Is 'Cheering' Him On, Richard Engel's Wife Mary Pens Essay About 6-Year-Old Son Henry's Death: 'One Last Goodbye', Richard Gere's 3 Children: Everything to Know, Recovering from Multiple Seizures and Autoimmune Encephalitis, Texas Boy Hopes to Go to 2nd Grade in Person, How This Mother Went to Extremes to Help Her Mentally Ill Son: 'He Knows He's Locked up Because of Mom', NFL Sportscaster and Former Player Irv Cross Had Stage 4 CTE, New Findings Show, Colin Farrell's 2 Sons: Everything to Know, How Bruce Willis' Family Is Helping Him 'Live as Full a Life as Possible' After Dementia Diagnosis, Emily Maynard Johnson Shares Sweet Photos of Baby Jones Wearing New Personalized Cranial Helmet, revealing that "school was the only place where.

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